The ENDIA Steering Committee
The Steering Committee is made up of clinicians and researchers who make the key decisions about how the ENDIA Study is conducted and managed.
Research Team
Chief Investigator: Jennifer J Couper
Investigators: Simon C Barry, Maria E Craig, Peter G Colman, Elizabeth A Davis, Emma Hamilton-Williams, Leonard C Harrison, Aveni Haynes, Tony Huynh, Ki Wook Kim, Grant Morahan, Helena Oakey, Megan A S Penno, William D Rawlinson, Richard O Sinnott, Georgia Soldatos, Rebecca L Thomson, Jason Tye Din, Peter J Vuillermin, John M Wentworth.
Project, Data and Biospecimen Managers: Amanda J Anderson, Pat J Ashwood, James D Brown, William Hu, Dao Huynh, Guinevere Martin, Kelly J McGorm
Clinical Scientist: Kelly Watson
Associate Investigators: Fergus Cameron, Andrew Day, Prue Lopez, Sarah Price
Research Coordinators: Sarah Beresford, Debra Bezuidenhout, Susan Brandrick, Carlie Butterworth, Jacki Catteau, Jasmin Foster, Helen Griffiths, Alison Gwiazdzinski, Candice Hall, Lee Henneken (Coeliac), Mikayla Hoffman, Amanda Hulley, Renee Kludas, Karen Mateevici, Bina Patel, Benjamin Ramoso, Alison Roberts, Alexandra Tully, Rosemary Wood.
Post-doctoral Fellows: Bea Delgado Corrales, Legana Fingerhut, Charles Foster, Chris Hope, Preston Leung, Richard Liu, Kylie-Ann Mallitt, Tim Sadlon, Bree Tillett, Ying Ying Wong.
Research Officers: Sabrina Binkowski, Bek Brittain, Minh Bui, Takudzwa Chivazve, Dexing Huang, Vanessa Prajitno, Gaetano Naselli, Katrina Ngui, Trung Nguyen, Thao Tran, Emily Ward, Yan Xu, Cynthia Yau.
Data Officers: Brydie Mellor, Sapphire Vaega, Abbey Gilbert
Students: Madeleine Hall, Kashia McGrath, Mohsin Mumtaz, Gregory Walker
Administrator: Leanne Cavenett.
Consumer Representatives
ENDIA has a consumer and community involvement group (ECCIG) which formed in 2016. This is comprised of around 30 stakeholders, caregivers, clinicians and those with lived experience of type 1 diabetes. The group is predominantly maintained via email and google groups, and works in a predominantly consultative and advisory capacity. However, increasingly, we are making calls to the group for interest in research collaboration, co-authorship and working towards codesign for upcoming studies.
Nicole Loft (aka Nikki Micklem)
Nikki (as we know her) is a mother of two children enrolled in the ENDIA Study. She has lived with type 1 diabetes since she was a little girl. She has been providing consumer input to the study since early 2020 to provide perspectives on what it’s like as a caregiver to children participating in the study, and how we can best maintain enthusiasm and engagement for the study as the years go by. Professionally, Nikki is a Haematology Nurse Practitioner, and has recently become engaged in research herself. She was nominated in 2022 as a Finalist for SA Health Young Professional of the Year!
Bill Nash
Bill Nash is a father of two children. He was diagnosed with type 1 diabetes just before he turned 5 years of age. Without giving his age away, that’s over 35 years ago! He is a fire sprinkler system design/draftsman. Outside of work, Bill’s interests include cycling, swimming, fishing and car restoration. He decided to help with the ENDIA Study to give something back to the people who are putting time and effort into Type 1 Research. “It would also be great to know that I had some small input into possibly finding out some valuable information that one day could assist in preventing people developing Type 1.” 