ENDIA Governance

ENDIA Study governance has been carefully structured to ensure rigorous internal and external oversight for the study. The framework is structured to ensure efficient and informed decision-making with shared distribution of roles and responsibilities. Central to the framework is the ENDIA Steering Committee, which holds the authority to make key decisions.

Members of the Steering Committee are:

• Prof. Jenny Couper, Adelaide University & Women’s and Children’s Hospital
• Dr. Megan Penno, Adelaide University
• Prof. Simon Barry, Adelaide University
• Dr. Rebecca Thomson, Adelaide University
• Dr. Kelly McGorm, Adelaide University
• A. Prof Emma Hamilton-Williams, University of Queensland
• A. Prof. Tony Huynh, University of Queensland & Queensland Children’s Hospital
• Prof. Len Harrison, WEHI
• Prof. John Wentworth, WEHI & Royal Melbourne Hospital
• Prof. Jason Tye-Din, WEHI & Royal Melbourne Hospital
• Prof. Peter Colman, Melbourne University & Royal Melbourne Hospital
• Prof. Richard Sinnott, University of Melbourne
• Dr. Georgia Soldatos, Monash Health & Monash University
• Prof. Peter Vuillermin, Deakin University
• Prof. Maria Craig, University of New South Wales & Children’s Hospital at Westmead
• Prof. Bill Rawlinson, University of New South Wales
• Dr. Ki Wook Kim, University of New South Wales
• Dr. Prudence Lopez, HMRI & John Hunter Children’s Hospital
• Dr. Aveni Haynes, The Telethon Kids Institute
• Prof. Liz Davis, The Telethon Kids Institute & Perth Children’s Hospital
• Prof. Grant Morahan, Harry Perkins Institute of Medical Research

Professor Jenny Couper is the Principal Investigator and Chief Clinical Officer based at Adelaide University and the Women’s and Children’s Hospital, South Australia. The Chief Scientific Officer is A. Professor Emma Hamilton-Williams of the University of  Queensland. The Chief Operating Officer is Doctor Megan Penno at Adelaide University.

The intention of these Executive roles is to improve administrative efficiency, foster collaboration, and establish effective leadership frameworks that are internationally recognisable.

The governance framework of the ENDIA Study is depicted below. Functions of the various committees, themes, teams and groups below the Steering Committee are divided into Operational Activities, Scientific Activities, and Clinical Activities.